Do I need consent from research participants to deposit data in a data repository?
Yes. To deposit data collected from human research participants in a data repository, you must have participant consent and approval from the MRU Human Research Ethics Board (HREB). This applies whether the dataset will be open or restricted.
If you plan to make the dataset openly available, participants should be given a clear choice about open sharing, separate from their consent to participate in the research. They should also be informed about anticipated secondary uses of the data, including who may have access and what kinds of research the data may support.
If you deposit a dataset based on human participant research in the MRU Data Repository, include the specific terms of participant consent in the dataset record, either in the terms of use field or by uploading a blank consent form. This helps future users understand what kinds of access and reuse are permitted.
If you are unsure whether your consent materials are sufficient for deposit, check with HREB before submitting the dataset.
